Department of Social Protection Begins Preparations for International Albinism Awareness Day
Birgen also stressed the critical need to raise awareness about skin cancer, one of the leading health risks for persons with albinism.
Social Protection Department begins preparations for International Albinism Awareness Day, set for June 13.Photo/Uasin Gishu.
By Robert Assad
The Department of Social Protection, in collaboration with the National Council for Persons with Disabilities (NCPWD) and other key stakeholders, has officially launched preparations for the upcoming International Albinism Awareness Day (IAAD), set to be commemorated on June 13th.
The planning meeting, held on Monday, brought together government officials and disability advocates to chart the way forward for this year’s event, which will recognize the achievements, challenges, and contributions of persons with albinism, both locally and globally.
Established by the United Nations General Assembly on December 18th, 2014, IAAD aims to promote awareness and understanding of albinism—a rare, genetically inherited condition that affects melanin production in the skin, hair, and eyes.
This year’s global theme is: “Demanding Our Rights: Protect Our Skin, Preserve Our Lives,” a call to action that underscores the need for equal rights, health protections, and recognition for persons with albinism.
Speaking during the meeting, Deputy County Commissioner for Soy, Ndalo Kose—who represented the County Commissioner—highlighted several government-led initiatives implemented through the NCPWD to support persons with albinism. These include the free distribution of sunscreen, provision of assistive devices, educational support, and economic empowerment programs.
“In line with the 2025 global theme, and recognizing June as Albinism Awareness Month, we are planning an inclusive event that will commemorate, promote, and advocate for the rights of persons with albinism. We aim to engage all stakeholders to ensure continued support and visibility for this important cause,” Kose said.
Chief Officer for Social Protection, Marion Birgen, emphasized that this year’s theme reflects a broader need to empower persons with albinism, both in policy and in practice, as envisioned under Governor Dr. Jonathan Bii’s Nguzo 5 development blueprint.
Birgen also stressed the critical need to raise awareness about skin cancer, one of the leading health risks for persons with albinism. “We must emphasize the life-threatening impact of prolonged sun exposure. Access to protective gear, early detection, and timely treatment are essential in preserving lives,” she said.
The planning session was also attended by Hon. Regina Chumba, Member of County Assembly representing persons with disabilities; County Director for Social Services, Peter Ruto; NCPWD County Coordinator, Hellen Tuei; and disability rights advocate, Penina Katam.
Preparations for IAAD 2025 will continue in the coming weeks, with further engagement of local communities, civil society organizations, and health service providers to ensure a successful and impactful commemoration.
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